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    Country
    Opportunity Status
    Funding Instrument Type
    Category
    Clear

    Long-term health outcomes of People Living with Spina Bifida based on the National Spina Bifida Patient Registry

    CDC-RFA-DD-25-0127

    Stephanie Griswold

    Opening date 8 Aug 2024, 12:00AM

    Closing date N/A

    Funding Opportunity Number: CDC-RFA-DD-25-0127

    Opportunity Category: Discretionary

    Expected Number of Awards: 19

    CFDA Number(s): 93.073 -- Birth Defects and Developmental Disabilities - Prevention and Surveillance

    Cost Sharing or Matching Requirement: No

    Posted Date: Aug 08, 2024 12:00:00 AM EDT

    Closing Date: N/A

    Estimated Total Program Funding: 2330000

    Award Ceiling: $488571

    Award Floor: $166428

    Eligible Applicants: County governments,Independent school districts,Small businesses,City or township governments,State governments,Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education,For profit organizations other than small businesses,Special district governments,Public and State controlled institutions of higher education,Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education,Private institutions of higher education,Native American tribal governments (Federally recognized)

    Additional Information on Eligibility: Organizations will determine eligibility per Section 399V-2 of the Public Health Service Act (42 U.S.C. 280g-13

    Description: The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

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